I am so busy lately! Between literacy training for a couple hours twice a week, either Gilda's Club or bollywood dancing on Tuesdays, and French group on Wednesday, my evenings are booked solid. Add to that my usual routine of appointments (two last week, two this week). Then we went to see my brother play this weekend (they won again! Up to 5-1 on the season and my brother continues to play well), and I just signed up to start volunteering for an hour once a week in one of the local elementary schools. Plus starting my GRE class in a couple of weeks. Plus my application for grad school. Plus..... I can't even remember anymore. Do I have other things to do?
Unfortunately my GVHD is acting up, which is stressing me out a little bit. I'm getting more dry, thickened, discolored patches of skin. Mostly they're just little dots, but it's happening despite applying steroid cream every day. I'm going to go up to twice a day. I'm also having some gut discomfort when I eat and a little nausea. I'm hoping the solution is to eat smaller amounts more frequently. Today is Day One of the smaller amounts more frequently experiment and so far it's going well. I'm just hoping I can get the symptoms under control before I go see my doctor on Friday so that he won't put me on steroids. Steroids are my enemy.
AND I've been super tired recently. No need to look too far on that one, but of course I always say "why am I so tired?" Guess I'm not as totally ready for a full load of activities as I thought. Fatigue is the most common complaint post-transplant, and I've had two, so I guess that means I get to complain about being tired twice as much? Hahaha. I know this is a problem, I should have anticipated it, but it still bothers me that I'm not fully recovered from transplant yet. Or even worse, that this level of fatigue might be my new normal.
But it's really great that I'm getting out there and doing more things. I'm very excited about starting my new volunteering programs! I just have to make sure that I don't take on too many things, that I keep my activity load manageable so that I can fulfill all my commitments and not make myself sick.