Monday, October 11, 2010


I am so busy lately!  Between literacy training for a couple hours twice a week, either Gilda's Club or bollywood dancing on Tuesdays, and French group on Wednesday, my evenings are booked solid.  Add to that my usual routine of appointments (two last week, two this week).  Then we went to see my brother play this weekend (they won again!  Up to 5-1 on the season and my brother continues to play well), and I just signed up to start volunteering for an hour once a week in one of the local elementary schools.  Plus starting my GRE class in a couple of weeks.  Plus my application for grad school.  Plus..... I can't even remember anymore.  Do I have other things to do?

Unfortunately my GVHD is acting up, which is stressing me out a little bit.  I'm getting more dry, thickened, discolored patches of skin.  Mostly they're just little dots, but it's happening despite applying steroid cream every day.  I'm going to go up to twice a day.  I'm also having some gut discomfort when I eat and a little nausea.  I'm hoping the solution is to eat smaller amounts more frequently.  Today is Day One of the smaller amounts more frequently experiment and so far it's going well.  I'm just hoping I can get the symptoms under control before I go see my doctor on Friday so that he won't put me on steroids.  Steroids are my enemy. 

AND I've been super tired recently.  No need to look too far on that one, but of course I always say "why am I so tired?"  Guess I'm not as totally ready for a full load of activities as I thought.  Fatigue is the most common complaint post-transplant, and I've had two, so I guess that means I get to complain about being tired twice as much?  Hahaha.  I know this is a problem, I should have anticipated it, but it still bothers me that I'm not fully recovered from transplant yet.  Or even worse, that this level of fatigue might be my new normal.

But it's really great that I'm getting out there and doing more things.  I'm very excited about starting my new volunteering programs!  I just have to make sure that I don't take on too many things, that I keep my activity load manageable so that I can fulfill all my commitments and not make myself sick.


Andromeda said...

Yikes, I think anyone would be tired with a schedule like that! Hope you still have time set aside for relaxing, even just a few minutes a day to keep from getting too overwhelmed!

(word verification: cruise. I think it's a hint for you, lol)

Leesa said...

Hey Mir...

I don't doubt why your soo tired.. But, don't over do it, too.. as you know, I'm sure!!
I think that Andromeda is right-- hint- cruise!!!

Have a good week!

Anonymous said...

No wonder you are tired, you are doing a lot. But good on you too for getting out there and keeping active and busy! Make sure you look after yourself and don't over do it too much.

Zhu said...

Busy is good! Finally doing things outside the hospital. Yay! And a lot of positive activities too. Oh I can see you meeting someone... :-D

As for being tired, of course it could be because of all that you went through. But remember it's also the season to feel like crap, with the weather change.

getyourselfconnected said...

I would be exhausted if I had to do all you are doing! Keep at it girl!

Great news on your brother, I can see him in a New England jersey.

With you so busy, what am I to do with a brand new copy of "Time and Again" ready to ship????

Yeah, I threw a chess game to an 8 year old, but I think he earned it.

getyourselfconnected said...

Oh yeah, you have mail!

au soleil levant said...

Andromeda - Cruise indeed! No speeding!

Leesa - thanks, I'm trying to not do too much!

Kim - glad other people think I have a reason to be tired! thanks.

Zhu - good point about the weather change. I'm definitely glad to have activities that don't revolve around the hospital!

GYSC - oooh, I like the idea of my bro in a Pats jersey!

pro said...
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