Or should I say, legendary?
Just had to work my new favorite show, How I Met Your Mother, in there somehow.
I had a super fun week! I was at the hospital Tuesday, Wednesday, Thursday, AND today!
Don't worry, I am fine, it was just for routine checkups and tests. Tuesday I had an appointment with my doctor, Wednesday I had an upper GI scope (read: they stuck a tube down my throat to look for GVHD) and colonoscopy, Thursday I had a PET/CT to check on my gut leukemia (there shouldn't be any), and today was another checkup with my doctor. They're keeping a close eye on me because I might have some GVHD cooking. Well, that's what they say, but I know they're really scheduling me for two visits a week because I'm so charming and amusing. I brighten up their days.
That's what I tell myself, at least.
For both the scope things and the PET/CT you have to take these preparatory drinks. For the PET/CT it's barium sulfate. It looks kind of like milk but more watery, and it has this nasty kind of chalky taste that they try to cover up with a little vanilla. You usually have to drink two bottles of it, but this time I told them I was having a lot of nausea and they only made me drink one bottle. Apparently they can still get a good picture with only one bottle of the stuff in you. So why on earth do they make you take two? From now on I am always going to tell them I'm nauseous so I only have to drink one bottle.
The GI scope and the colonoscopy were to look for GVHD and another virus, CMV, which is something that almost everyone has and can cause problems if it goes active. I thought I would be able to avoid a colonoscopy for another 25 years, but no such luck. To prep for the colonoscopy you have to drink this stuff to clean you out called "Go Litely" that comes as a powder in a huge gallon jug. You mix it with water and you can add flavor packets: cherry, orange, lemon lime, or pineapple. I chose lemon lime, thinking the acidic flavors would help cover up the taste of the Go Litely, which was certain to be terrible. Well, I don't know if the other flavors would have worked better, but the lemon lime didn't cover up anything, it just gave a sort of lemony overtone to a really gross flavor. I got through about half of the jug and then I vomited and didn't take anymore because I couldn't keep it down. Apparently it wasn't a huge deal because they were able to do the colonoscopy anyway.
Things I learned this week that I never wanted to learn: barium sulfate tastes better than Go Litely.
No definitive results back from those tests. My doctor thinks the PET/CT looks good, but he isn't a radiologist so we have to wait for the official word.
Last week I had a bone marrow biopsy. I am so glad I started getting sedation for those. I used to just do it with a local anesthetic, but let me tell you, being knocked out when you get a gigantic needle shoved into your hip bone to suck out the marrow is a really good thing. Especially since some of the doctors seem to have trouble getting into my bones. I drink too much milk, I guess. Anyway, that one came back with no leukemia and 100% second donor cells. So he is comfortably set up with a nice, healthy marrow. That's good news.