The transplant went off smoothly yesterday and now I'm just doing a bunch of waiting.
Thank you all so much for your kind wishes, it meant a lot to me, even if I have been remiss about posting. No news meant I was a little tired.
People often describe bone marrow transplants as being anti-climactic because it's a pretty simple procedure. You get hooked up to a bag of orangey-reddish fluid, it infuses into you over however much time (mine lasted less than a half an hour), and then the nurse unhooks you and that is that. No big surgery and recovery time, you don't get to go home, no fireworks go off. There is still a long road to recovery after a bone marrow transplant. The first step in that recovery is engraftment, when the new cells start growing in my bones. That will probably happen in a couple of weeks. Right now my white count is quite low and the exciting part is keeping infection free without an immune system.
White blood cells: 0.4 (normal is 4-10)
Hemoglobin: 9.4 (normal is 12-15)
Hematocrit: 27.5% (normal is 35-45%)
Platelets: 81 (normal is 150-500)
When my hemoglobin drops below 8 and my platelets below 15 they will give me blood and platelet transfusions. Folks, it is so important to donate blood products. My treatment would not be possible if there weren't wonderful people out there who donate blood and platelets (and I fully understand that many people cannot for various reasons and this is in no way meant to disparage them). My body is not producing red blood cells or platelets right now and without transfusions I would not be in a good place. Make an appointment to donate today!
In about 2-3 weeks when I have neutrophil counts above .5 for three consecutive days I can think about going home but my immune system will still be very weak for the first 100 days after transplant and I will have to follow a restricted diet - no raw fruits or veggies, no moldy cheeses, no raw or rare meat, etc.
But that is a long way away and for now I'm taking it one day at a time. Day +1 is so far so good.